Voices of Dementia

Independent Storytellers

Amy Berkley


Amy Berkley

Independent Storyteller Independent Storytellers
two women smiling.
old woman on left and young woman on right seeing each other.

Project Description

Of the sixty million Americans providing care to a family member, two thirds are women providing care to aging mothers. These stories explore the unique relationships between aging mothers and their adult daughters, and how those relationships change with the onset of dementia. These stories and analyses will be collected into an online archive accessible to families undergoing similar experiences.

Partner Details

Amy Berkley


Amy Berkley

Independent Storyteller Independent Storytellers

Amy Berkley, PhD, RN, nurse researcher specializing in older adults, sleep disorders, and the care of people with Alzheimer’s disease and related dementias (ADRD). Dr. Berkley works to include the voices of people living with dementia in research studies to ensure their experiences and perceptions are incorporated into practice. Her goal is to develop interventions that support older adults and their families in their current living situation, to avoid or delay progressive decline and institutionalization, and to improve standards of care and quality of life in institutional living facilities.

Project Details

Digital Genres:
Oral History

Topics:
Aging

Contact:

Amy Berkley

amysberkley@gmail.com